Supporting people with Down syndrome

This paper discusses how the increasing life span of people with Down syndrome has created the need for more resources for teen and adult recognition and support. (This paper was written in 1996, so there may be more institutional support for Down syndrome partnerships now, but I haven’t kept up with the literature.) It always strikes me that the same arguments used to advocate for people with disabilities are/could be beneficially used for abled individuals, too. Encouraging partnerships and marriage because it promotes longevity and provides social support? Social equality? Yes please, for everyone!

There was a really moving anecdote the author described when, after a focus group meeting for parents with children with Down syndrome, a mother came up to him and said, “Thank you for involving me because this is the first occasion since my son was born that I had had any concept that my son might have a future.”


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